The Reading Room

Callum May 9, 2014 0
The Reading Room

Care Bill amendment extends scope of the Human Rights Act; journalist Jackie Ashley on the warning signs that presaged husband Andrew Marr’s stroke; the complex science and ethics surrounding the treatment of coma patients; and is it really that hard to produce a Braille e-reader that doesn’t cost the Earth…?

– As of yesterday, people receiving domiciliary care arranged or funded by the government, as well as users of services funded through direct payments, are now protected by the Human Rights Act.

– The trial of Oscar Pistorius continues; The Week has a helpfully concise write-up of developments over the past few days.

As reported by The Mirror, the four-year manslaughter sentence given to Lewis Gill for fatally punching Andrew Young – a 40-year-old man living with Asperger’s – still stands, following a decision by the Court of Appeal.

Journalist Sean Dilley writes for Sky News on his lack of surprise at a recent Scope survey of attitudes to disability among the general public.

– The Technology section of the BBC News website poses an interesting question – whither affordable, Braille-enabled e-book readers?

– Journalist Jackie Ashley writes of her support for a Stroke Association campaign to raise awareness of transient ischaemic attacks: “I now know a lot about TIAs, but knew nothing two years ago. That’s when my husband, the broadcaster Andrew Marr, had a couple of “funny turns” but thought they were nothing serious. A few months later he went on to have a major, life-changing stroke, which resulted in four months in hospital; eight months off work and permanent disability.

– Thursday May 15th is Global Accessibility Awareness Day – an international initiative intended to get people thinking about the accessibility (or lack thereof) of digital technology that was initially inspired by this blog post.

The New Stateman has lengthy but fascinating read on the history on people in persistent vegetative states, locked-in syndrome and the space between life and death – “In Europe alone the number of new coma cases is estimated to be around 230,000 annually, of which some 30,000 will languish in a persistent vegetative state. They are some of the most tragic and expensive artefacts of modern intensive care.

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