Care Bill amendment extends scope of the Human Rights Act; journalist Jackie Ashley on the warning signs that presaged husband Andrew Marr’s stroke; the complex science and ethics surrounding the treatment of coma patients; and is it really that hard to produce a Braille e-reader that doesn’t cost the Earth…?
– As of yesterday, people receiving domiciliary care arranged or funded by the government, as well as users of services funded through direct payments, are now protected by the Human Rights Act.
– The trial of Oscar Pistorius continues; The Week has a helpfully concise write-up of developments over the past few days.
– As reported by The Mirror, the four-year manslaughter sentence given to Lewis Gill for fatally punching Andrew Young – a 40-year-old man living with Asperger’s – still stands, following a decision by the Court of Appeal.
– Journalist Sean Dilley writes for Sky News on his lack of surprise at a recent Scope survey of attitudes to disability among the general public.
– The Technology section of the BBC News website poses an interesting question – whither affordable, Braille-enabled e-book readers?
– Journalist Jackie Ashley writes of her support for a Stroke Association campaign to raise awareness of transient ischaemic attacks: “I now know a lot about TIAs, but knew nothing two years ago. That’s when my husband, the broadcaster Andrew Marr, had a couple of “funny turns” but thought they were nothing serious. A few months later he went on to have a major, life-changing stroke, which resulted in four months in hospital; eight months off work and permanent disability.“
– Thursday May 15th is Global Accessibility Awareness Day – an international initiative intended to get people thinking about the accessibility (or lack thereof) of digital technology that was initially inspired by this blog post.
– The New Stateman has lengthy but fascinating read on the history on people in persistent vegetative states, locked-in syndrome and the space between life and death – “In Europe alone the number of new coma cases is estimated to be around 230,000 annually, of which some 30,000 will languish in a persistent vegetative state. They are some of the most tragic and expensive artefacts of modern intensive care.“